Miles's side of the story

Few weeks ago, when I was setting up my instagram. I was searching the hast tag Piebaldism. For people to connect with. I was some what disappointed there were very few people I found that used that hast tag. The ones i did come across I commented on almost all their pictures. It made my heart melt see all that beautiful skin. The one account I commented on belonged to a beautiful mother named Lisa. Her son has piebaldism an I must say he is one of the most handsome young boys I ever seen. His white streak down his forehead was the best. It kind of reminded me of the scar harry potter has. So his mother began commenting back and forth with me. She shared some details about how she wished she could find more people like her son so he could have people to relate to. When I  seen this I got so excited like yes! I told her to go on face book to look up a fb group called piebaldism. I let her know there was over 400 awesome supportive people there. Its like one big family. So she found the group and added me on fb. One more member added to our family. Its weird we go out searching for other people with piebaldism or parents of children who have it. I mean come on having something so rare once you find someone else. Its like a secret club, no one really knows how it feels to have something so rare. then not to know anyone else who has it is even worse. So after awhile I built an incredible bond with this new family of mine. Then I asked if 2 people wanted to do an interview with me. I chose Lisa for one the parents of a child with piebaldism because I already built a bond with her. So i typed up some questions then emails them to her. In my eyes she is an incredible strong woman. She is very supportive of her son, we need more parents like her. Well her son Miles is from San Jose CA. He is 11 years old, mother is Mexican American and his father is African American. they knew from birth that he had piebladism the doctors told them but they didn't have much knowledge of what it really was. So they just moved on with life. he still was a precious healthy baby boy. no one else in the family has piebaldism that they know of. when miles was a baby people would always ask them if they colored his hair. at birth his white forelock was actually blonde. when he was about eight or nine he started asking if his mother could cover his forehead with makeup an color his hair to cover up his white streak. So as any caring loving mother she wanted her son to be happy an feel secure in his body. with that in mind she took him to a makeup counter and had them put makeup on to see if they could cover the white forelock up. that didn't turn out too well it actually made it look even worse. she told him that if he still waned to color his hair when he got older he could., but that he should be proud of the way he looks be cause god made him this way. His pediatrician told miles that when people make rude comment such as "you're turning into an old man because you have grey hair" that miles should just laugh it off and agree with them or say he is aging backwards. he says that sometimes kids tell him his hair is cool and adults almost always tell him they love his hair. Miles s a very special little boy with awesome unique features. Me personally i cant wait to see the great man he becomes