My sleepy baby makes my heart melt. I wake up every morning just to play in her hair.
Wednesday, August 19, 2015
Thursday, July 30, 2015
Many shades of love
It amazes me how much she has changed. She went from being very pale to all her beautiful shades showing. Her hair was blonde now it's pure Elsa white. Looking for a photographer to do her photo shoot
Sunday, July 26, 2015
Meet my Piebaby
Well I just could not hold back any longer. Her smile melts my soul. I hated having to blur her face out. I wanted people to get the same feeling I do when they see her.
Saturday, July 25, 2015
Thursday, July 23, 2015
Miles's side of the story
Few weeks ago, when I was setting up my instagram. I was searching the hast tag Piebaldism. For people to connect with. I was some what disappointed there were very few people I found that used that hast tag. The ones i did come across I commented on almost all their pictures. It made my heart melt see all that beautiful skin. The one account I commented on belonged to a beautiful mother named Lisa. Her son has piebaldism an I must say he is one of the most handsome young boys I ever seen. His white streak down his forehead was the best. It kind of reminded me of the scar harry potter has. So his mother began commenting back and forth with me. She shared some details about how she wished she could find more people like her son so he could have people to relate to. When I seen this I got so excited like yes! I told her to go on face book to look up a fb group called piebaldism. I let her know there was over 400 awesome supportive people there. Its like one big family. So she found the group and added me on fb. One more member added to our family. Its weird we go out searching for other people with piebaldism or parents of children who have it. I mean come on having something so rare once you find someone else. Its like a secret club, no one really knows how it feels to have something so rare. then not to know anyone else who has it is even worse. So after awhile I built an incredible bond with this new family of mine. Then I asked if 2 people wanted to do an interview with me. I chose Lisa for one the parents of a child with piebaldism because I already built a bond with her. So i typed up some questions then emails them to her. In my eyes she is an incredible strong woman. She is very supportive of her son, we need more parents like her. Well her son Miles is from San Jose CA. He is 11 years old, mother is Mexican American and his father is African American. they knew from birth that he had piebladism the doctors told them but they didn't have much knowledge of what it really was. So they just moved on with life. he still was a precious healthy baby boy. no one else in the family has piebaldism that they know of. when miles was a baby people would always ask them if they colored his hair. at birth his white forelock was actually blonde. when he was about eight or nine he started asking if his mother could cover his forehead with makeup an color his hair to cover up his white streak. So as any caring loving mother she wanted her son to be happy an feel secure in his body. with that in mind she took him to a makeup counter and had them put makeup on to see if they could cover the white forelock up. that didn't turn out too well it actually made it look even worse. she told him that if he still waned to color his hair when he got older he could., but that he should be proud of the way he looks be cause god made him this way. His pediatrician told miles that when people make rude comment such as "you're turning into an old man because you have grey hair" that miles should just laugh it off and agree with them or say he is aging backwards. he says that sometimes kids tell him his hair is cool and adults almost always tell him they love his hair. Miles s a very special little boy with awesome unique features. Me personally i cant wait to see the great man he becomes
Friday, July 17, 2015
What they didn't tell you
What they failed tell you when you were a little kid. Well where should I start they failed to let me know a lot of things. The most important one is, not everyone loves the same. As a little girl no one told me there would be peoole in my life who would try to break me down. No one told me that sometimes family can hurt you the most. No one told me that there would be people you can never satisfy. It doesn't matter how hard you try in their eyes you will never measure up. No one ever told me that some souls are darker than others. No one ever told me that in life there will be times I'm kicked while I'm already struggling to get up. In life no one told me that being emotional an caring could be a huge downfall. No one ever told me that there Will be peoole who will always remind you of a mistake while you are trying make things right. No one ever told me in life when your happy there will be people who will always burst your bubble. But I was told many times that fairytale life doesn't exist where I come from. That there are no happy endings everyone suffers. You know what I tell them? In my eyes they do! It doesn't matter how much darkness that I come across. I still love unicorns and rainbows. I still love watching people marry the one they love. I still love helping who ever I can. I still love being a mother of 3 an a soon to be wife. I still love meeting new people. Getting to learn their habits. Finding out what they overcome in life. So with my kids i won't forget to tell them the downs in life. I refuse to sugar coat it. I also refuse to crush their dreams. My goal as a parent is to raise men/women who make a difference in life. I will lovingly push them but make sure I'm always there to catch them just in case they fall. I want my children to have an incredible amount of confidence that's matched who humbleness. Oh yea fairytales do exist! You just have to open the right door an make sure you keep the wrong people out that door.
Saturday, July 11, 2015
Embrace your skin
The beautiful ms. Kayla grey is from the piebaldism group I'm apart of. I asked her permission to share this picture. Every time I see it I fall in love. You see her confidence, she truly is amazing.