Friday, June 26, 2015

A family I never knew I had

So yesterday I was trying work on my blog along with my facebook fan page. I'm trying build my viewers to get the word out. I'm sure there are more parents out there in my shoes. I don't want them to feel they are alone in this!. I'm still trying to wrap my head around everything that's going on. Its a shame when I searched Piebaldism on Facebook not many things showed up. This search made me very sad until I stumbled onto this Facebook group filled with parents with children who have piebaldism. Also people who have it their self. I cant explain my excitement when I clicked the joint button. My heart was racing, I knew it would be a great thing. I started to scroll through the pictures posted on there. The first one was an adorable baby with hair just like my piebaby. my heart melted... I was finally home. I found it so incredible that the people are from all over the world. Yet somehow they all seemed to look like one big rare family.So I made a post introducing my self an my piebaby. I added a few colors to show off her beautiful marks an pure white hair.Everyone was so friendly an began to share their stories with me. Some said it was passed down from generation to generation. Others said their baby was first they ever known. Seeing the adult's picture really made me smile. I was trying piece together of how my piebaby will look when she gets older. I seen one woman post her wedding picture. Oh geez she was gorgeous! Seeing her in that veil with her beautiful white streak of hair showing. It was  precious moment that I cant wait for my daughter to have one day.I'm really looking forward to bounding with this group of amazing people.

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