Finding Out The Truth-Piebaldism

I kept looking at my daughter trying to register everything. Her skin was milky pale an a blondish.white streak of hair and the rest pitch black. I started texting pictures to the family. First I gave them a FYI hey the baby has a blonde streak of hair in the front. Then I sent the pictures haha. Everyone was confused an could not believe it. When my fiance called worried. I told him we had a beautiful baby girl. 5lbs 12oz 8inches long. She has your nose and she has a streak of platinum blonde hair. He thought I was joking I had to reassure him I was not. He was amazed and happy. Nurses would come in to check us. I found it so funny, I would wait for them to notice. Bam like clock work once they saw pie baby's hair their mouth dropped. Of course all the females were so jealous of her stylist hair. I was so in love so it didn't matter. wasn't until he first check-up I noticed her color coming in. No one else in my family was like this as I could remember. So I didn't may it much mind I figured her color was just coming in slow....So that's what I was trying to convince my self of. As a mother we just know in our hearts about certain things. So one night I couldn't sleep at all. I went on google looking for answers. The only thing I could find was vitiligio. Nothing about a baby getting darker but only in some spots. So I turned to my 2 mommie groups I was apart of. 1. was a breastfeeding group. 2. was  baby wearing group. I love these women! when ever I had questions I could easily go on an ask a question. I got a great amount of support. So I took posted few pics of my daughter when she was born. I also posted pics of the progress of her skin color changing. I asked if any other moms went through this. of course 95% of the answers were vitiligio. some had no idea what could be happening but they were just in love with my daughter. There was on woman that posted info about piebaldism. The picture of the baby looked just like mine! the white hair streak was the dead giveaway. not sure why I didn't think her hair would be apart of this. I was just so focused on her skin. so I did some research on it. in my heart I knew that's what she had maybe I was in a little denial. I ended up crying my self to sleep. as a woman I know how important our body is. we get made fun of if we don't fit the mold of the perfect woman in society. I didn't want my daughter to go through anything extra in life. As any mother I wanted to protect her. Live a happy life without worrying if she will find a great man to love her. I talked to a few friends, they all reassured me everything would be ok. Who actually wants to fit in any more haha. So at her 4 month check up her Dr. came in the room. I love this guy he is super duper happy. We chatted for a few minutes. He asked if I had any questions. So I said hey im a little worried about her skin color. I think she might have......Bam he cut me off an says "piebaldism" ugh y heart dropped. He said yup her white forelock is a giveaway. He started to give me tips on how to deal with everything. Told me how rare an beautiful this is. He said embrace it! Most kids who do not fit the "perfect mold of society" usually have higher self esteem than other kids who fit right in. He said the different ones are more confident. He gave me some suggestion on possible treatments. He made sure to stress, hey she is beautiful I would leave her the way she is! He told me start a blog, share your wonderful journey with the world! Make people aware something so rare. Share your journey an success as a mother. I held back the tears. I was thinking wow this man is incredible an he is right. So that's what my goal is to do share our story. the ups-downs! Im so new to this so we can learn together. I feel so lucky to have a great support system. I also feel so lucky to have such a rare beauty. Oh man wait until I reveal her face! her eyes will simply make you melt, make your uterus flutter <3