Tuesday, October 6, 2015

Saturday, October 3, 2015

Beauty

My pie baby is sitting up like a big girl

Shrimp & gravy

Kissed by a angel

Doniale is a beautiful strong African american woman. I had the pleasure to converse with her. She agreed to be featured on my blog. We were connected through a facebook group called "Piebaldism"
She was around 1 years old when he mother found out Doniale had Piebaldism. Their doctor had told them that it was just  birthmark. The only other member in her family who had it was her grandfather. She was teased an taunted as a child for her different appearance. She had to deal with the awkward looks, the whispering behind her back on why she looked different. Called names like old lady, cruella and the witch. even with all this horrible treatment she never let it push her into a depression. She did feel left out an not normal. not understanding why she looked different from everyone else.one day she hit her breaking point as anyone else would an she fought back! Now that she older she embraces her unique beauty wishing her future children with be blessed with the same beauty as her.  Doniale said "Piebaldism changed my life because of the uncommon. people to this day stare at me and some are very amazed by it because its not a highlight which is today's trend" this has helped her feel whole in life she is her own person. she doesn't blend in with the crowd. she walks through the streets with her head held high.  pure African american queen in her prime. If she could give a message to others growing up with Piebaldism an struggling. She would tell them to embrace it people will judge you don't matter what! growing up she was told she was kissed by a angel an blessed with wisdom. She works in the hospitality field she tried a few different career paths. of course one was hair, how couldn't she. later she found out hospitality was the way for her. Doniale loves spending quality time with her family. Making incredible Italian dishes. She into reading books that touch your soul an works your imagination. Spirituality is a big thing in books she reads. As a child she would use her black hair to cover her white hair, trying to hide it. this was her way of trying to avoid the negative attention from others. Growing up she had a great support system from her family which made things easier for her. Now that she is grown up the random questions are fine to her. She doesn't really get rude ones any more due to the grey/white hair style is trending. Doniale met a whole family with Piebaldism in St Louis she instantly clicked with them. seeing someone else with pibaldism its like finding being part of a exclusive vip group. Piebadism has never effected her love life if anything it has attracted more candidates for her haha. of course she dyed coloring her hair at one point but that didnt turn out to well. she loves her streak an everything else that comes with Piebaldism! she wants people to remember her by her incredible personality  how compassionate an uplifting woman she is like how Maya Angelou.


Sunday, September 6, 2015

Sunday dinners

Now that I'm an licensed property & casualty agent. I'm so beyond busy with life! When the weekend comes I have a million things to do. So when it comes to Sunday I normally just want to rest an prepare for my crazy week. Today was different I woke up craving fried chicken. Oh yes I said fried chicken! I almost drooled writing that haha. Not to toot my own horn but I'm the fried chicken queen 👑 in my family. I take so much pride in making my chicken. The seasoning process is like therapy for my soul. Well my chicken in is marinating.! I will post pics when It's done a quick run down of the process.

Wednesday, August 19, 2015

Good morning

My sleepy baby makes my heart melt. I wake up every morning just to play in her hair.

Thursday, July 30, 2015

Many shades of love

It  amazes me how much she has changed. She went from being very pale to all her beautiful shades showing. Her hair was blonde now it's pure Elsa white. Looking for a photographer to do her photo shoot

Sunday, July 26, 2015

Meet my Piebaby

Well I just could not hold back any longer. Her smile melts my soul. I hated having to blur her face out. I wanted people to get the same feeling I do when they see her.

Thursday, July 23, 2015

Miles's side of the story

Few weeks ago, when I was setting up my instagram. I was searching the hast tag Piebaldism. For people to connect with. I was some what disappointed there were very few people I found that used that hast tag. The ones i did come across I commented on almost all their pictures. It made my heart melt see all that beautiful skin. The one account I commented on belonged to a beautiful mother named Lisa. Her son has piebaldism an I must say he is one of the most handsome young boys I ever seen. His white streak down his forehead was the best. It kind of reminded me of the scar harry potter has. So his mother began commenting back and forth with me. She shared some details about how she wished she could find more people like her son so he could have people to relate to. When I  seen this I got so excited like yes! I told her to go on face book to look up a fb group called piebaldism. I let her know there was over 400 awesome supportive people there. Its like one big family. So she found the group and added me on fb. One more member added to our family. Its weird we go out searching for other people with piebaldism or parents of children who have it. I mean come on having something so rare once you find someone else. Its like a secret club, no one really knows how it feels to have something so rare. then not to know anyone else who has it is even worse. So after awhile I built an incredible bond with this new family of mine. Then I asked if 2 people wanted to do an interview with me. I chose Lisa for one the parents of a child with piebaldism because I already built a bond with her. So i typed up some questions then emails them to her. In my eyes she is an incredible strong woman. She is very supportive of her son, we need more parents like her. Well her son Miles is from San Jose CA. He is 11 years old, mother is Mexican American and his father is African American. they knew from birth that he had piebladism the doctors told them but they didn't have much knowledge of what it really was. So they just moved on with life. he still was a precious healthy baby boy. no one else in the family has piebaldism that they know of. when miles was a baby people would always ask them if they colored his hair. at birth his white forelock was actually blonde. when he was about eight or nine he started asking if his mother could cover his forehead with makeup an color his hair to cover up his white streak. So as any caring loving mother she wanted her son to be happy an feel secure in his body. with that in mind she took him to a makeup counter and had them put makeup on to see if they could cover the white forelock up. that didn't turn out too well it actually made it look even worse. she told him that if he still waned to color his hair when he got older he could., but that he should be proud of the way he looks be cause god made him this way. His pediatrician told miles that when people make rude comment such as "you're turning into an old man because you have grey hair" that miles should just laugh it off and agree with them or say he is aging backwards. he says that sometimes kids tell him his hair is cool and adults almost always tell him they love his hair. Miles s a very special little boy with awesome unique features. Me personally i cant wait to see the great man he becomes

Friday, July 17, 2015

What they didn't tell you

What they failed tell you when you were a little kid. Well where should I start they failed to let me know a lot of things. The most important one is, not everyone loves the same. As a little girl no one told me there would be peoole in my life who would try to break me down. No one told me that sometimes family can hurt you the most. No one told me that there would be people you can never satisfy. It doesn't matter how hard you try in their eyes you will never measure up. No one ever told me that some souls are darker than others. No one ever told me that in life there will be times I'm kicked while I'm already struggling to get up. In life no one told me that being emotional an caring could be a huge downfall.  No one ever told me that there Will be peoole who will always remind you of a mistake while you are trying make things right. No one ever told me in life when your happy there will be people who will always burst your bubble. But I was told many times that fairytale life doesn't exist where I come from. That there are no happy endings everyone suffers. You know what I tell them?  In my eyes they do! It doesn't matter how much darkness that I come across. I still love unicorns and rainbows. I still love watching people marry the one they love. I still love helping who ever I can. I still love being a mother of 3 an a soon to be wife. I still love meeting new people. Getting to learn their habits. Finding out what they overcome in life. So with my kids i won't forget to tell them the downs in life. I refuse to sugar coat it. I also refuse to crush their dreams. My goal as a parent is to raise men/women who make a difference in life. I will lovingly push them but make sure I'm always there to catch them just in case they fall. I want my children to have an incredible amount of confidence that's matched who humbleness. Oh yea fairytales do exist! You just have to open the right door an make sure you keep the wrong people out that door.

Saturday, July 11, 2015

Embrace your skin

The beautiful ms. Kayla grey is from the piebaldism group I'm apart of. I asked her permission to share this picture. Every time I see it I fall in love. You see her confidence, she truly is amazing.

My color swirl

Thing 2 who is the youngest of the set. 4 minutes to be exact! I call her my chocolate bear she loves when I call her that. She embracing her beautiful chocolate skin. Confidence is huge in my family. We all different sizes, colors, curly hair, straight hair,white hair or red hair 😍.  She is am incredible big sister, I'm very proud of her.

Thursday, July 9, 2015

Love comes in all colors

Today we took a picture to show off her beautiful piebaldism legs. We are apart of an awesome sauce group on facebook. About 400 members! Everyone started taking pictures to show off their legs. So we joined the photo train.

Wednesday, July 1, 2015

Stay at home mom to office mom

So Monday after spending 10 months as a stay at he mom. I went back to the working world. Oh was it bitter sweet! I never been one who wanted to stay home an raise kids. I need to be in the work life,it makes me feel more productive. Even though I stay home over 3 years to take care of premie twins. It killed me to lose my job at 3 months with pie baby. I cried and cried when they left me go. I knew it was for the best an the health of my unborn. My goal was to get back into the insurance field. Some odd reason I'm one of those people who love insurance. It's very chaotic an stressful. Maybe I just like being punished haha. So I Landes an incredible job at a great company which is very hard to get into. 195 people applied for the position only 17 got hired. *toots horn* yay me *happy dance* I knew it would be a struggle transitioning back. The first day was the hardest. Being away from pie baby when she so young crushed my heart. I don't get home until like 8pm. By that time I feed the kids,give them their baths an put them to bed. Starting a new job after being home almost a year is like first day of high school. A fresh start! I'm studying for my property & casualty license. Which is a lot of work it's like a college course in 2 weeks. Talk about pressure, trying retain so much information. I'm a pretty positive person. Now I just have learn to juggle work, 3 kids, a fiance, my blog ,networking an remembering to shave my legs before I wear a dress. Which I forgot to do the shave part today haha. Oh I forgot my glasses an my charger also today. I keep telling my self baby steps. Hopefully by next week I will have this chaotic life down pack!

Friday, June 26, 2015

A family I never knew I had

So yesterday I was trying work on my blog along with my facebook fan page. I'm trying build my viewers to get the word out. I'm sure there are more parents out there in my shoes. I don't want them to feel they are alone in this!. I'm still trying to wrap my head around everything that's going on. Its a shame when I searched Piebaldism on Facebook not many things showed up. This search made me very sad until I stumbled onto this Facebook group filled with parents with children who have piebaldism. Also people who have it their self. I cant explain my excitement when I clicked the joint button. My heart was racing, I knew it would be a great thing. I started to scroll through the pictures posted on there. The first one was an adorable baby with hair just like my piebaby. my heart melted... I was finally home. I found it so incredible that the people are from all over the world. Yet somehow they all seemed to look like one big rare family.So I made a post introducing my self an my piebaby. I added a few colors to show off her beautiful marks an pure white hair.Everyone was so friendly an began to share their stories with me. Some said it was passed down from generation to generation. Others said their baby was first they ever known. Seeing the adult's picture really made me smile. I was trying piece together of how my piebaby will look when she gets older. I seen one woman post her wedding picture. Oh geez she was gorgeous! Seeing her in that veil with her beautiful white streak of hair showing. It was  precious moment that I cant wait for my daughter to have one day.I'm really looking forward to bounding with this group of amazing people.

Thursday, June 25, 2015

Always Learning Something New

In august I will be 28 years old! Yet life never seems to stop teaching me things. My days are not complete unless I feel accomplished about learning something new. In times I'm bored I will randomly go online searching topics. Not to brag or anything but I'm something like the Google Queen "heyyy". The other day I came across an article from www.medicaldaily.com Every summer I get eaten alive from mosquitoes. I Fell like a human buffet for them. After I had piebaby, things seemed to get worse. the moment I step outside I see them flying towards me. This does not make me a happy mama. In the article the talk about people with the blood type O. Which I so happen to have! we have a 85% higher chance than any other blood type to get eaten alive by bugs. Well not really eaten alive haha just attacked. I mean this seriously makes so much sense. I can be in a group of people an only I will have at least 10 or more bites. Meanwhile no one else got bit or they have like 1. This so is not fair at all in my eyes. So if you dislike the pesky little buggers. Come hang out with me, they will ignore you an come party on my skin. I mean hey I think everyone should have  blood type O friend to take with them camping! Its better than bug spray an dangerous candles. I see I'm going have to put my incredible "toots my horn" Google master ninja skills to use to find a away to build an invisible shield to keep me bite free this summer. Once unlock that secret code I promise to update every one. For now mama bear has to head out into the dangerous bug jungle to retrieve food for dinner tonight. Wish me luck <3

Wednesday, June 24, 2015

Finding Out The Truth-Piebaldism

I kept looking at my daughter trying to register everything. Her skin was milky pale an a blondish.white streak of hair and the rest pitch black. I started texting pictures to the family. First I gave them a FYI hey the baby has a blonde streak of hair in the front. Then I sent the pictures haha. Everyone was confused an could not believe it. When my fiance called worried. I told him we had a beautiful baby girl. 5lbs 12oz 8inches long. She has your nose and she has a streak of platinum blonde hair. He thought I was joking I had to reassure him I was not. He was amazed and happy. Nurses would come in to check us. I found it so funny, I would wait for them to notice. Bam like clock work once they saw pie baby's hair their mouth dropped. Of course all the females were so jealous of her stylist hair. I was so in love so it didn't matter. wasn't until he first check-up I noticed her color coming in. No one else in my family was like this as I could remember. So I didn't may it much mind I figured her color was just coming in slow....So that's what I was trying to convince my self of. As a mother we just know in our hearts about certain things. So one night I couldn't sleep at all. I went on google looking for answers. The only thing I could find was vitiligio. Nothing about a baby getting darker but only in some spots. So I turned to my 2 mommie groups I was apart of. 1. was a breastfeeding group. 2. was  baby wearing group. I love these women! when ever I had questions I could easily go on an ask a question. I got a great amount of support. So I took posted few pics of my daughter when she was born. I also posted pics of the progress of her skin color changing. I asked if any other moms went through this. of course 95% of the answers were vitiligio. some had no idea what could be happening but they were just in love with my daughter. There was on woman that posted info about piebaldism. The picture of the baby looked just like mine! the white hair streak was the dead giveaway. not sure why I didn't think her hair would be apart of this. I was just so focused on her skin. so I did some research on it. in my heart I knew that's what she had maybe I was in a little denial. I ended up crying my self to sleep. as a woman I know how important our body is. we get made fun of if we don't fit the mold of the perfect woman in society. I didn't want my daughter to go through anything extra in life. As any mother I wanted to protect her. Live a happy life without worrying if she will find a great man to love her. I talked to a few friends, they all reassured me everything would be ok. Who actually wants to fit in any more haha. So at her 4 month check up her Dr. came in the room. I love this guy he is super duper happy. We chatted for a few minutes. He asked if I had any questions. So I said hey im a little worried about her skin color. I think she might have......Bam he cut me off an says "piebaldism" ugh y heart dropped. He said yup her white forelock is a giveaway. He started to give me tips on how to deal with everything. Told me how rare an beautiful this is. He said embrace it! Most kids who do not fit the "perfect mold of society" usually have higher self esteem than other kids who fit right in. He said the different ones are more confident. He gave me some suggestion on possible treatments. He made sure to stress, hey she is beautiful I would leave her the way she is! He told me start a blog, share your wonderful journey with the world! Make people aware something so rare. Share your journey an success as a mother. I held back the tears. I was thinking wow this man is incredible an he is right. So that's what my goal is to do share our story. the ups-downs! Im so new to this so we can learn together. I feel so lucky to have a great support system. I also feel so lucky to have such a rare beauty. Oh man wait until I reveal her face! her eyes will simply make you melt, make your uterus flutter <3

Wednesday, June 17, 2015

Summer time cutie pie

We don't spend much time in the sun. Her skin is so sensative,especially the white patches. She can get sunburn very easy also a higher chance of developing skin cancer. So no day trips for us, unless it's in the ac haha. I'm going do some researching tonight to find a really good sunblock for her. Pie baby doesn't really like the heat. She likes to be home with the ac on hanging on with her diaper on. Awww isn't that the life? I'm jealous as times because babies have it made. If we do go outside some where by time we get home she beyond pooped out! Then she ends up like this picture hehe. It's so hard being a 4 month old.

Tuesday, June 16, 2015

Pie Baby' lov-li streak

When she started to get her color this is when we noticed the white streak on her forehead a lot more

Pie Baby 3 days old

As you can see she was very pale. I was even questioned if she was an albino.

How lovely is that

This is Pie Baby at 4 months old. The most beautiful example of piebaldism. as of now I do not wish to reveal her face. First I Will like to build a bond with my readers. Maybe one day when the time is right .

Monday, June 15, 2015

A love so rare

June 16th 2014 my life had a major change. That very day I found out I would be having my 3rd or 4th child. I already have twins so my chances were pretty high on another set.
*wipes the sweat off my forehead* haha :) My first OB appointment was not until August 8th. Oh geez was I so anxious. I needed to know asap if I was having twins again. So that day came an oh boy there was only 1 baby. Now fiance was trying very hard to find an extra baby hidden. I went home to stuff my face and look at the pictures of my baby. As the months went on a lot of not so good things happened. My pregnancy was high risk due to me delivering the twins at 24 weeks. Around 10 weeks I started to bleed heavy with pie baby. You want to talk about fear ugh. Wasn't sure if I want to cry,scream or get down on my knees to ask the universe for help. Everything turned out fine but i had weekly or biweekly cervix checks. Not my cup of tea really but anything for my unborn. Sept 16th I found out Pie baby was a girl!

I swore up and down I was going to have a boy! I even dreamed of him and told everyone I was having a boy haha. Going into the baby section looking at all the pretty pink sparkle dresses made me forget I even wanted a boy. My pregnancy was 100% harder on my body than with the twins. There were plenty of moment I feared I would deliver very early. Once I hit 27 weeks I felt so much better. Once I hit 32 weeks I knew my baby would be safe. I had a few scares ended in the hospital. But she held out until her scheduled c-section date. Me and my fiance wanted valentines day. I had my heart set on it! My heart was broken when my Dr. said "No you have to deliver feb 10th" I was so mad but then I was like ok fine that's 4 days faster. I needed my baby in my arms. I needed to know how soft her skin was. How she looked,smelled and felt in my arms. During my surgery prep my Dr. knew I was very nervous. So he tried to small talk me but oh I knew that huge needle was coming for my back! He mentioned oh the baby will be born 4 days before Valentines day.

I instantly got upset and began to rant about them not giving me Valentines day. Then he told me his birthday was Valentines day. Right there I knew everything would be okay. It was a sign the Dr. delivering my baby has the birthday i cried so much about. Once they finally got pie baby out of me. There was silence,right there my heart dropped. In my head I said "why don't I hear my baby" "why is nobody saying anything" "please let her be ok". Then I heard her sweet cry. My mother kept trying run over to see the baby. They had to warn her at least 3 times she had to wait haha. Finally Im drained, almost falling asleep. My mother gets the okay, to head over. She comes back and says " oh my god your baby has blond hair".

Quick run down I am hispanic and black. Carmel complexion my hair ranged from dark brown to reddish/blonde. So Im very confused what is going on. My mother said "she has a streak of like platinum blonde hair" I just look at her confused. She runs over to take a picture then comes back.  I look at her phone just totally amazed. Then my mother bring the baby over to me. she says "here is your baby" So you know thats when the water works started. Finally she was here, I kissed her. Now all the Drs are chatting amazed on her hair. They all say they never seen anything like it. I get back to my recovery room. They bring pie baby to me. I automatically started nursing her. One by one doctors came in asking to see her hair. Then some came asking if their co worker could see the baby. Oh I should have know right there my life would change.